Difficult Behaviors – Part One

Difficult Behaviors in Dementia:
How to Keep Patients Safe and Caregivers Sane

by Luciana Mitzkun Weston,
Villa Alamar Community Services Director

Part one:
Identifying Difficult Behaviors

At times, people living with Alzheimer’s or other forms of dementia act differently than what would be considered their normal behavior. Whether it be expressions of frustration and stubbornness in the beginning stages of the disease, or resistance to care and agitation in later stages, some changes in behavior should be expected.

Dementia often causes patients to experience confusion in relation to place and time, what to do next, and what others expect of them in social situations. Confusion leads to an increase in feelings of fear and anxiety, which in turn causes a patient to exhibit difficult behaviors. Caregivers are often puzzled and bewildered by these troublesome behaviors.

Some of these behaviors are perplexing, but harmless. Caregivers may even find it amusing when their loved ones start tearing page after page out of magazines and folding them multiple times into increasingly smaller pieces, until they can no longer be folded; some patients move items around the house, continuously rearranging and moving them again; some patients enjoy bursting the bubbles on packing materials, or watching the same TV show over and over again.

Dementia patients find such repetitive actions to be soothing and can continuously engage in performing them for countless hours. Although some of these behaviors can constitute an annoyance to their loved ones, they are merely a manifestation of a patient doing what simple task he can to entertain himself.

If the behavior is not harmful to the patient or others and can be performed without major disruptions to the household, it should not be discouraged. Ensuring that the patient has a safe and comfortable  space for himself to engage in the chosen behavior is the best strategy in this case. Harmless behaviors, although sometimes annoying to caregivers, should not be considered a difficult behavior, but rather seen as an “activity.” Activities are desirable: They keep the person at ease, engaged, and centered in the moment.

On the other hand, some behaviors can pose a risk to the patient’s wellbeing, disrupt the functionality of the household, or interfere with the caregiver’s ability to provide care. Behaviors such as shuffling and moving furniture, dismantling and disassembling electronics, wandering and getting lost in the neighborhood, picking at one’s own skin to the point of creating open sores, or screaming and yelling at odd hours, are certainly behaviors that call for intervention as well as an increase in the patient’s supervision. Such behaviors can pose a risk to the patient’s and caregiver’s health, and significantly decrease the caregiver’s ability to provide care.

As a general rule:

If the behavior is harmful to the patient or others or

if the behavior interferes with the caregiver’s ability to provide care,

it should be considered a “difficult behavior.”

We should also consider that what we define  as a difficult behavior is often a manifestation of some form of stress or discomfort: Your loved one may be over- or under-stimulated, may be in some form of pain (physical or emotional) or may be suffering from depression or anxiety, or even in some cases, be afflicted with an infection or other health condition. Look for the underlying cause. While the behavior itself deserves attention, the cause behind it requires proper investigation and care (we will address these strategies on Part III of this article).

Difficult behaviors in dementia patients are the primary reason caregivers seek Villa Alamar’s memory care services. Indeed, most residents do experience an improvement in the frequency and severity of difficult behaviors after transitioning to Villa Alamar.

This improvement is made possible by the many dementia supportive strategies we have adopted in our community. The environment itself makes a big difference to the residents’ ability to conquer confusion and achieve enjoyment in daily activities. Having freedom to safely stroll indoors and outdoors through patios and paseos, having access to nature (trees, sounds, smells, birds), receiving encouragement to participate in programs that are designed to be achievable, meaningful, and fun for the resident, and having experienced and kind caregivers always close and ready to provide assistance: All these strategies work to suppress confusion and promote wellbeing and social interaction. Less confusion generates lower anxiety levels and reduced urge to act in difficult or inappropriate ways. In the right environment, with careful and consistent stimulation, dementia patients thrive!

Family caregivers can adopt many of these strategies in their own homes to help reduce the occurrences of difficult behaviors and to extend their ability to care for their loved ones in place. 

Next:
Part II: Preventing Difficult Behaviors

Record Visitor Numbers at Senior Expo

Villa Alamar and Alexander Gardens are Proud Silver Sponsors of the 31st Annual Senior Expo of Santa Barbara

Pictured: Mitch Leichter, Ingrid Lino, and Shandy Newlan. Photo: Mary Brook.

Multiple businesses and organizations joined together this October 2nd to offer valuable information and services to local seniors at the 31st Annual Senior Expo, a Santa Barbara tradition.

The event took place at the Earl Warren Showgrounds and counted with 120 exhibitors and 300 volunteers, workers, and exhibitor associates.

A record number of visitors (over 1000) attended the Expo, where they were able to gather information on a variety of services including health, transportation, and financial planning.

Memory care and assisted living are some of the major concerns for seniors in Santa Barbara. Our Villa Alamar and Alexander Garden teams were there to provide firsthand information on quality assisted living and memory care services.

We were also represented at the event’s planning level. Our Associate Executive Director, Joseph Newlan, LVN is a member of the event’s all-volunteer planning committee while also, in collaboration with Jeanne West, RN, co-coordinator and recruiter of nurses for the flu-shot clinic.

Jeanne was the driving force behind the creation of the flu-shot clinic back in 2001, when it was first offered at the Senior Expo with vaccines donated by Cottage Health. The clinic became a big success and its creation is accredited for doubling the number of visitors at the Expo, which at the time was dwindling.

This year the flu-shot clinic at the Expo gave visitors 764 vaccines over a 3-hour period, and counted with the help of 16 nursing students and 16 nurses (RNs and LVNs), among them our beloved Resident Services Director, Shandy Newlan, LVN (who is also Joseph’s wife).

Shandy herself administered 42 shots on that morning.  “I really enjoy these clinics,” she said, “It is a joy to be able to help so many people in one single event.”

In 2020 Joseph will be taking over the duties of coordinating and recruiting nurses for the event, while Jeanne, who is also the Community Engagement Manager at Hospice of Santa Barbara, will be dedicating herself to inter-agencies recruitment and coordination.

Back for the third time this year, the Caregiver’s Cafe was offered as a relaxing place to receive support and information. Caregivers received consultations and information on services and strategies for their individual needs, including in-home help, assisted living, and caregiver support.

Other valuable resources available included blood pressure screening by Santa Barbara Neighborhood Clinics, glaucoma screening by Lions Sight & Hearing, hearing screening by Miracle Ear® of Santa Barbara, and bone density scans by OsteoStrong.

Hailed as one of the best Senior Expos to date, the event’s committee led by the Family Service Agency deserves recognition for its flawless organization and for the quality of the services provided.

The staff and management of Villa Alamar and Alexander Gardens are proud of having collaborated for the success of this year’s event and are looking forward to contributing to the 2020 Expo!