By Luciana Mitzkun,
Community Services Director
Santa Barbara residents are no stranger to disasters: We’ve had fires, floods, earthquakes, mudslides, tsunamis, oil spills, tornadoes, and even a hurricane! In addition to community disasters, there are also possible personal emergencies that could happen to all of us, such as falls, accidents, or an unexpected health event.
If you are a caregiver for a person with dementia, any one of those situations could suddenly restrict your ability to provide care. A common trip-and-fall can potentially result in being in a cast for 6 weeks! Should you be temporarily incapacitated, have you planned for uninterrupted care for your loved one?
Anticipating and preparing for what to do in case of an emergency is the key to overcome adversity with minimum disruption to the continuity of care. Every caregiver should have a contingency plan for care ready to be put into place should the need arise.
A good emergency care plan should include provisions for immediate temporary placement in a memory care community, such as Villa Alamar. These facilities can become a second home for dementia patients, where they can be safely housed while receiving assistance with every activity of daily living in a nurturing and socially stimulating setting. Having your loved one comfortably placed in a memory care home would allow you to fully attend to your own emerging needs without having to also attend to the many tasks of direct caregiving.
Temporary placement in a residential care facility is commonly referred to as respite care. Not every memory care home offers respite, we do, and not every home that does offer respite care has beds available when you need one. To maximize your chances of finding respite care should you need it, make sure you follow these steps – and do it before an emergency happens:
- Identify a suitable memory care home. Memory care homes come in all shapes and sizes, some are particularly appropriate for your loved one, some are not. Research available homes, visit them in person, talk to the administrator. Make sure the home is secured, equipped with wandering prevention systems and that it offers plenty of activities that are engaging and stimulating for a person affected with dementia. Ask about their nursing team, caregiver per resident ratio, and length of shifts of their care staff. Prefer a home that offers a team of caregivers with longevity in their positions and a long history of caring for dementia patients: staff stability and experience matter.
- Request a nursing assessment. Once the home is identified, ask the administrator for a nursing assessment. The nursing team should meet with you and your loved one to review all information regarding medical and social needs. This assessment will help confirm the appropriateness of the services provided for your loved one. It could also result in recommendations for additional services and care strategies.
- Ask the doctor for a report. You will need a physician’s report in hand for placement of any kind, permanent or temporary. In California, the Health and Human Services Agency requires a form 602A (easily downloadable on the web) with a valid test for tuberculosis (TB) signed by the doctor within 1 year of placement. As there are many doctor visits throughout the year, there are many opportunities for you to renew this form. Make sure you always have a current 602A with TB test.
- Keep current prescriptions signed by the doctor. For residential care, all medications must be accompanied by signed orders from the doctor, including details about dosages and frequency, which are required even for medications that are bought over the counter (such as Tylenol and supplement vitamins). These days where everything is in the computer, this requirement is not as easy to fulfill as one would think it would be! Get in the habit of collecting written prescriptions at every visit with the doctor, and every time there is a change in the medication, and keep them current and handy with your other placement documentation.
- Collect copies of required documents. In a folder, with the 602A and signed prescription orders, keep copies of the following: photo identification, Medicare card, and insurance cards. If applicable, also add copies of power of attorney, health care directive, and POLST (Physician Ordered Life Sustaining Treatments).
- Prepare an overnight bag. You may want to have an overnight bag prepared in advance with essential toiletries and clothing enough to last for 3 days. The care home should be able to provide incontinence supplies as needed, although you are welcome bring your own. Other items that should accompany your loved one include: All current medications (in their original bottles), adaptive devices (cane, walker), corrective devices (eyeglasses, hearing aids), items of personal comfort, and items of personal interest. All items should be marked with the person’s name. DO NOT include any valuables such as cash, jewelry, irreplaceable mementos, or anything that has intrinsic or emotional value.
- Share your contingency respite plan with a trusted proxy. Identify a family member or a trusted friend to assist you in case you need help. Share the knowledge of your plan and the location where the above items are stored with them, so they could quickly assess the bag and documentation when needed.
There are several steps in arranging for a respite stay, therefore it would be very difficult to complete them all at once, specially while immersed in an emergency event. Start now.
After completing these 7 steps, you are prepared for a quick placement in case of emergency. Hopefully, there will be no emergency, although things do not always happen as expected. It is best to be prepared.
On a happier note, keep in mind that a short stay in a memory care home may also be used to accommodate a fortunate event. Many caregivers have used the respite stay at Villa Alamar to take a well-deserved break, to attend a reunion out of town, to visit with friends and family, or to travel abroad. Having a respite plan in place may also offer you peace of mind to take more breaks from caregiving, knowing that your loved one is safe, comfortable, and content in his home away from home.
The cost of a respite stay is close to that of a 3-star hotel. At Villa Alamar it is available at $350 per day, although in our area, you may find it for up to $450 per day. Fortunately, there are grants that may help you pay for some of these costs. Your pre-selected care home can help you find some of these programs. Also, contact the local office of the Alzheimer’s Association (805-892-4259) and the Coast Caregiver Resource Center (805-569-8950 ext. 1) for additional information on respite grants.
If you would like more information about respite options and availability at Villa Alamar, please contact me, Luciana at 805-682-9345.
Do not wait for an emergency. Organize your respite care strategy now and allow our community to be there for you and your loved one, should you need assistance.